IT'S A ZIG, then a ZAG--
just took Jon to airport-- week-end was lovely, but we are still all concerned-Tom was droopy on Sat. and having trouble breathing as they downsized his trach and plan to possibly remove it soon--we took him some cookies that he loved, plus he had a piece of pie for lunch, and when we went back later that day with Erik, he was edgy and his blood sugar had raced from normal 110 to 360! Very serious and they labeled him diabetic!! SO that is how fragile it all is-Sunday morning it was back down to 129, BUT they also had put him back in ICU to get his breathing stable, and that was greatly helped by dialysis - 3 LITERS worth again--so when Jon and I saw him later yesterday, he looked and felt better, but still was not eating again until this morning--it is a VERY DIFFICULT road, and we all three are trying to cope, sometimes in different ways--Jon tends to be practical/solid and one-day at a time, Erik does his homework and begins second-guessing what is really happening, and I am somewhere in between--I have been called to a meeting this Wednesday in Apopka with his primary doctor as they are Concerned, so we are all interested in what transpires-Erik will go with me and Jon will be on speaker phone-we also are requesting a conference at hospital with Tom and his doctor team to further explore facts--90 days were up yesterday, and he is FAR from well--can hardly stand, but is weak from these ongoing infections probably which have to take their course..
SO, we are all preoccupied, interested to see how this week shakes out, and I am trying also to work with a very good appointment tomorrow-
Jon got the tires rotated on my car, an oil change etc. so that was so helpful too..and today the engine light came on so will h
ave to check that out..Hope all are well and love to all every-where!
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Oh my, Marilyn! Bless your heart--we can hardly follow it all when you write it--can only imagine what it is to LIVE it! Poor Tom--he probably doesn't know which way is UP any more. And it's so difficult for his sons to see Dad like this, making progress but oh, so slowly! Whoever would have thought it all would go like this--but I guess we SHOULD think about things like that. Life is uncertain at best and when there are health concerns already, one never knows. We thank you for keeping us updated--this blog is SO helpful and then you don't have to repeat it all again and again. We'll be eager to hear how the conference goes and what they predict for long-term. They must be somewhat concerned that he is still neeeding dialysis as much as he does (I know that is a big concern for you, too!) So.......keep on keeping on--we are rooting for you all. Special sister hugs to you and Tom--we'll watch closely for any updates! Love you all........
ReplyDeleteDonna & John
Marilyn, We feel so sorry that this road has been so difficult and such a roller coaster! It's unbelievable. It will be good for you 3 to be able to all sit down together with Tom's primary care DR as well as conference with his Doctors there at the hospital this week. I'm sure it is hard for them to make a plan or prediction as these complications keep popping up. Tom is one tough fella to keep hanging in there. We all keep hoping things will straighten out and the recovery will be more smooth and progressive. Our hearts ache for all of you! But continue to take a day at a time, looking up, and keeping on! Give Tom a big hug from us! With lots of love from all of us here, Kent & Sharon and Brent's & Brad's families
ReplyDeleteHi, just wanted to wish you a nice Memorial Day Weekend and wishing you blessed days and improvements to Uncle Tom's medical conditions in the near future! It is a real bummer in such times that we all live so far away from each other and can't be a support in person. So instead please know you are all in my thoughts and prayers. Love, SCOTT
ReplyDeleteMarilyn, Tom Jon and Eric:
ReplyDeleteJust wanted to let you know that we're thinking about you and will be praying for you too. Thank you for keeping us updated with the blog. I know this isn't easy for you but glad that you are staying strong for Tom. I'm so glad that you all were able to make it to our wedding last year- it was really special to have the whole family there and we appreciate that you made the effort! And I am so glad I got to meet you all. We will be hoping things improve. Love from Shanna and Todd