MONDAY, JUNE 14 Update

This is Sharon giving an update for Marilyn from the brief e-mail she sent us. Nothing new to report, but wanted to let you know how things are going since Marilyn is so busy! Sharon (sister)




Tom is...
..plodding along and slowly making progress!


Monday, June 14th -- "BRIEFLY-- all is going very slowly, but I am in a big push to submit our final bid today for this big project, so I am off to meet my artist now, take Tom to dialysis, get to client, etc. --- will catch up later -- he is out walking 3 times a day --- very weak though, and not much else going on -- it is a slow road thus far.... Love, Marilyn "

WELCOME HOME, TOM!!!

GETTING INTO A ROUTINE...

WELL, slowly we are moving along-back to a minimal routine, sleeping through the night, walking around, getting the newspaper, enjoying his "freedom", getting his hair washed and cut, going to doctor here in Apopka this afternoon for follow-up and a few questions--very fatigued, very weak, 100 lbs. less of muscle and flesh, but moving slowly along. Eating pretty good, doing dialysis at a nearby clinic (hopefully temporarily) while I work on a project bid, and look forward to healthier days-Again, thanks to all who care and support-will keep touch!!

COMING HOME AT LAST!

HALLELUJAH!! We have been moving this week toward "DISCHARGE PLANNING" and he is scheduled to come home Friday afternoon!! If all goes as planned-- He is SO ready, has taken great strides in wellness this past week, even since Sunday, and is off all iv's, oxygen, walked 400 ft. around the halls twice day before yesterday and will probably walk more today, using his walker but quite sturdy..they tested him for "independence" with getting out of bed, getting around, brushing his teeth etc. etc. and he passed with flying colors, so now insurance won't accept him for rehab, and he probably doesn't need it as he can get "strong" on his own, and be back in the house-so much better, and eating my good cooking! So we are all a little nervous, but ready, and it does not seem too daunting, although I am sure there are tough steps ahead-still faces full surgery to close/section his bowel and GET rid of the ostomy bag! And he is still to go to dialysis clinic 3 times a week, which I greatly hope disappears SOON--he LOOKS normal, eats well and is rather BORED-they pretty much leave him alone now as there are so many other sicker people. SO LIFE MOVES on, and I shall probably pick him up tomorrow afternoon. HURRAY and good cheer!
Thinking of all-

MEMORIAL DAY

Memorial Day-a time to remember, and eat with family. Erik and I spent the afternoon yesterday with Tom and it was very nice-he was proud to walk with Erik down the hallway, standing pretty straight, using his walker for help, but doing quite well-still wobbly on occasion, and has a ways to go for more strength, BUT ALL SYSTEMS ARE GO, they have stabilized everything now and infections are mostly gone. They are to take trach out completely tomorrow, so that will be a major milestone, and his open wound there will automatically close within a week. AND they plan to get him over to re-start his THERAPY on Wednesday if all goes as planned-he is ready and yet will be grueling, as they say they work them on and off for up to 6 hours. So maybe this will move along now-father's day is coming, then July 4th, then Labor Day--where will we be?? Not sure, but at least we are going in right direction.
Thanks to all who keep touch, and think of us, and write us-means so much. And I continue to love all of the photos/graphics! Thanks much to Sharon!
Am baking and cooking this afternoon-will get together for eats with Erik and all-and then will share banana bread with TOM tomorrow!
Lotsa love to all, and it is good to remember..

40TH ANNIVERSARY -- MAY 30TH

HAPPY 40TH ANNIVERSARY, TOM & MARILYN!

A SPECIAL HUG

HUGS AND LOTS OF LOVE!